Nathan had his hearing screened today. For the test they put a little probe type thing in one ear and have other wires taped behind each ear and one on the forehead. He needs to be resting in order for them to get clear results. Well today it took awhile to get him resting..:) He is just too curious. He also doesn't like anything in his ear! We did however, finally get it done! His right ear is all good. His left ear needs more testing.. So another appointment will be made with an audio-ologist. Then we will be able to get a clearer picture of what hearing issues there are with that ear..
I did think that he may have hearing issues. I am a little sad to know that there is a problem. And frustrated that I don't have any answers yet. It just seems to be one thing after another with this little guy. Not knowing is very hard. He has had a few issues come up this week. The other day he slept forever and couldn't be woken up. It was very scary. I called the cardiology department and he ended up waking up while I was on the phone. I've kept a close eye on him and he hasn't had any sleep issues since. It's impossible to go through a day without worry. I am hopefull that once his surgery is over and all the tests are done, that life will go to some kind of normal. I am hoping to get a better idea of when the surgery may be next visit to the cardiologist.
On the positive side, Nathan went to his first truck show with daddy.. He did very well in the car, and we all enjoyed the day together. This Saturday we go to a picnic hosted by the Down syndrome assoc. We are looking forward to it and to Mykaela's upcoming birthday..
A family's journey from the very beginning of living with Heart disease and Down Syndrome.
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1 comment:
Wow...what a nice blog. I remember these days so well with Tyler my oldest. He is 8 now. Everything was so very scary. I remember the trice-weekly trips to have his billirubin tested. I also remember quite well the first hearing test and having his spine looked at years later. Some of the many trips and calls I have taken with him.
I can only say "keep the faith" It gets easier and life does back to normal..it has changed forever, but long term this new place is pretty darn good. It does come with challenges, but oh the good moments when the come are all so very good.
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