DS Pic-nic and Cardio Appt.

This past Saturday, the Down Syndrome Association in our area hosted a picnic. So of course we went! It was a great experience. We were greated right away, plastered with name tags and introduced to many families. There was a parc, pool, fishing pond, tatoo's, face painting, raffle table, live entertainment and gifts for the kids. Oh and a free BBQ to boot! We all had a blast and made some new friends. We will definately be going again next year!

Nathan had his appt with his cardiologist today. All went well. Can you believe he weighs 10 lbs already! He was wide awake for this appointment, and enthrawelled the new doctor and med student with his cuteness. So far the game plan is still the same to have surgery between 4-6 months. They don't want to do surgery prior to 4 months since then the heart can be trickier to work with. So Nathan is doing well on his own so farr and does not need any medication yet. The next visit will be in 6 weeks, and then he will have a echocardiogram as well. (that is an ultrasound of the heart)

Kristopher had a field trip today, to a pool in nepean. His class was suppose to go to Mt. Cascades but that got quickly switched due to the weather. Brian took the day off and went with him. They had a blast and came home happy. Mykaela is looking forward to her birthday tomorrow and is very anxious for the arrival of Gramma and presents. And that is all for now, I am off to spend some time with my hubby!

Hearing test

Nathan had his hearing screened today. For the test they put a little probe type thing in one ear and have other wires taped behind each ear and one on the forehead. He needs to be resting in order for them to get clear results. Well today it took awhile to get him resting..:) He is just too curious. He also doesn't like anything in his ear! We did however, finally get it done! His right ear is all good. His left ear needs more testing.. So another appointment will be made with an audio-ologist. Then we will be able to get a clearer picture of what hearing issues there are with that ear..

I did think that he may have hearing issues. I am a little sad to know that there is a problem. And frustrated that I don't have any answers yet. It just seems to be one thing after another with this little guy. Not knowing is very hard. He has had a few issues come up this week. The other day he slept forever and couldn't be woken up. It was very scary. I called the cardiology department and he ended up waking up while I was on the phone. I've kept a close eye on him and he hasn't had any sleep issues since. It's impossible to go through a day without worry. I am hopefull that once his surgery is over and all the tests are done, that life will go to some kind of normal. I am hoping to get a better idea of when the surgery may be next visit to the cardiologist.

On the positive side, Nathan went to his first truck show with daddy.. He did very well in the car, and we all enjoyed the day together. This Saturday we go to a picnic hosted by the Down syndrome assoc. We are looking forward to it and to Mykaela's upcoming birthday..