Nathan was born May 12, 2008. He weighed 8 lbs 9oz, and came into the world screaming. He had the biggest cheeks I've ever seen and purple feet. That is all the glimpse I got of him while they wisked him away to be checked out by the neo-natal doctor.
Prior to being born, during ultra sound, a difference was noticed in little Nathan's heart. One that required a better look by a fetal echocardiogram. Once the echo was done I (Nate's mom) was taken into an office with the cardiologist, a cardiology neo natal nurse and the cardiology departments councellor. Ugh..Right away I knew I wouldn't like what I was about to hear. I was terrified. I found out during this meeting that little Nate was going to be born with a heart defect. He was diagnosed with Complete Atrioventricular Canal Defect. I was also told that this type of heart defect was very common in children with Down Syndrome. I felt like I had been run over by a truck. I was in complete shock. I went through all sorts of feelings during the following several weeks. I was numb, terribly sad, worried, angry, frustrated and overwhelmingly sad again.. I took the time to research little Nate's heart defect. Some of what I found scared me more and some was re-assuring. I was told different stories as to what to expect at birth. One was great, he would be born okay and be able to be with me in my room right away, the other not so good he would be wisked away and be in the NICU at an ajoining hospital.
After little Nate was born and checked over he was handed to my hubby Brian and was brought to visit me. Both Brian and I were able to spend twenty minutes cuddling with him before he was brought to the NICU. It wasn't the worst case senario or the best, it was somewhere in between. Little Nate stayed in the Nicu one night. He was put on oxygen for a little while. Apparently it was due to fluid in his lungs since he came into the world via c-section and not due to his heart. He was brought to the adjoining hospital for an echo and an ekg. It confimed what was previously diagnosed. He was also checked out by the genetics team since there were a few signs of Down Syndrome. Blood tests were taken we were to expect the results the following week. We were left feeling worried and sad yet again. Shortly after all the tests were completed little Nate was allowed to be in the room with me. We were overjoyed that he was doing so well. The next day we were cleared to come home!! Even better news!
Shortly after coming home we received a call from the Genetics department confirming that Nathan had Down Syndrome. We took it very hard at first. It's been very difficult to explain all of what is going on with Nathan to his older siblings. (Kristopher age 10 and Mykaela soon to be 9) We are now coming to terms with little Nate's diagnosis, and are looking into what we can do as parents to give him the brightest future available. It has been two weeks since Nathan's birth and he is doing well so farr. He has us all wrapped around his little finger. He is just that cute. And while sleep is still evasive I wouldn't have it any other way. Little Nathan is a true blessing to this family.
Prior to being born, during ultra sound, a difference was noticed in little Nathan's heart. One that required a better look by a fetal echocardiogram. Once the echo was done I (Nate's mom) was taken into an office with the cardiologist, a cardiology neo natal nurse and the cardiology departments councellor. Ugh..Right away I knew I wouldn't like what I was about to hear. I was terrified. I found out during this meeting that little Nate was going to be born with a heart defect. He was diagnosed with Complete Atrioventricular Canal Defect. I was also told that this type of heart defect was very common in children with Down Syndrome. I felt like I had been run over by a truck. I was in complete shock. I went through all sorts of feelings during the following several weeks. I was numb, terribly sad, worried, angry, frustrated and overwhelmingly sad again.. I took the time to research little Nate's heart defect. Some of what I found scared me more and some was re-assuring. I was told different stories as to what to expect at birth. One was great, he would be born okay and be able to be with me in my room right away, the other not so good he would be wisked away and be in the NICU at an ajoining hospital.
After little Nate was born and checked over he was handed to my hubby Brian and was brought to visit me. Both Brian and I were able to spend twenty minutes cuddling with him before he was brought to the NICU. It wasn't the worst case senario or the best, it was somewhere in between. Little Nate stayed in the Nicu one night. He was put on oxygen for a little while. Apparently it was due to fluid in his lungs since he came into the world via c-section and not due to his heart. He was brought to the adjoining hospital for an echo and an ekg. It confimed what was previously diagnosed. He was also checked out by the genetics team since there were a few signs of Down Syndrome. Blood tests were taken we were to expect the results the following week. We were left feeling worried and sad yet again. Shortly after all the tests were completed little Nate was allowed to be in the room with me. We were overjoyed that he was doing so well. The next day we were cleared to come home!! Even better news!
Shortly after coming home we received a call from the Genetics department confirming that Nathan had Down Syndrome. We took it very hard at first. It's been very difficult to explain all of what is going on with Nathan to his older siblings. (Kristopher age 10 and Mykaela soon to be 9) We are now coming to terms with little Nate's diagnosis, and are looking into what we can do as parents to give him the brightest future available. It has been two weeks since Nathan's birth and he is doing well so farr. He has us all wrapped around his little finger. He is just that cute. And while sleep is still evasive I wouldn't have it any other way. Little Nathan is a true blessing to this family.
4 comments:
This is beautiful Lyn! I never knew all the feelings that you were keeping inside..I was so glad to meet Nathan finally this weekend,and he is such a beautiful little guy...He will be a wonderful addition to our family...We love all of you very much and hope everything goes well with Nathans surgery,etc...XOXO Renee,Scott,Cody,Jaiden and Tristan..
Awwww Lyn, I am so sorry. I don't know what to do, should I call you or do you even want to talk to me? Things have been really wierd with us the last few months. I am scared to wake you if you are napping with Nathan. I am thinking about you and I wish all the best for Nathan and your family. Good luck....
Lisa
Hi Lyn. Got your announcement in the mail and it's on my fridge. I check here everyday, but I guess you are to busy to add anything. Lots of appointments coming up. Do keep us posted. Blogging is a good way, for sure. We're all thinking of you. Hope to see you soon.
Karen
Karen,
I wasn't sure how often people were checking the blog out. I will make a point to post more now that I know!
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